Blog Posts & Appearances
A collection of blog posts and speaking engagements I have done for The Marfan Foundation and other groups. All other writing can be found on Instagram.
Five Kitchen Tips Every Spoonie Needs To Know
Tips from a chronically ill professional chef to help you save time and conserve energy in the kitchen.
A Journey Of Acceptance
“I have begun to love the unique aspects of my body that are so distinctly Marfan. I see my scars as symbols of strength over everything I have endured. I see physical limitations as an opportunity to connect with whoever is able to assist me.”
Beyond The Selfie
A webinar discussing body image and life with a connective tissue dissorder. Hosted by The Marfan Foundation, this conversation covers the complexities of accepting a body that may not look or function like everyone elses.
